Pathological Demand Avoidance: World Autism Awareness Day

As it is World Autism Awareness Day, I would like to share some information on a lesser known type of autism, Pathological Demand Avoidance (PDA).

“Pathological demand avoidance (PDA) is increasingly, but not universally, accepted as a behaviour profile that is seen in some individuals on the autism spectrum.

People with a PDA behaviour profile share difficulties with others on the autism spectrum in social communication, social interaction and restricted and repetitive patterns of behaviours, activities or interests. 

However, those who present with this particular diagnostic profile are driven to avoid everyday demands and expectations to an extreme extent. This demand avoidant behaviour is rooted in an anxiety-based need to be in control.”

The National Autistic Society 2017 

Children with Pathological Demand Avoidance (PDA) do not often respond to typical parenting techniques or even the usual strategies for autism. These approaches either do not work or make the situation worse. Effective approaches to best support PDA children are quite different and therefore it is important for people to understand this.

Natasha, who writes over at unschoolingaspies.blogspot.co.uk, says that being flexible is key. “The more inflexible the child, the more flexible (and creative!) the adult needs to be.” So true!

Amelia has one word of advice for other PDA parents: “patience“. I couldn’t agree more! Lots of it. 

Further information on useful strategies can be found on The PDA Society website.

In terms of educational approaches, again The PDA Society website has an excellent educational strategies booklet from Positive PDA available for download here. The Autism Education Trust have also created this PDF document ‘Strategies for Teaching Pupils With PDA’ sponsored by Department for Education.

Kayleigh, A parent of a PDA child, also advises that PDA families “find people who are understanding”. I wholeheartedly agree. I feel that awareness, acceptance and understanding are essential. 

On that note, I was thrilled when I found out that Fiona is running the Milton Keynes Marathon to raise awareness – and funds – for PDA. She has already reached her £1000 target for The PDA Society, which is amazing! Of course, further donations are warmly welcomed!!! If you would like to sponsor Fiona, go to her Just Giving Fundraising Page.

Pathological Demand Avoidance, PDA, autism, World Autism Awareness Day, The PDA Society, SEND, ASD, ASC, charity, fundraising, events, marathon
Fiona in training for MK marathon

Further Reading:

Books

Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers and Other Professionals by Phil Christie et al

Can I tell you about Pathological Demand Avoidance? by Ruth Fidler and Phil Christie

Pathological Demand Avoidance Syndrome: My Daughter is NOT Naughty by Jane Sherwin

Websites

www.pdasociety.org.uk

www.thepdaresource.com

Blogs

memyselfandpda.com

www.stephstwogirls.co.uk

dinkyandme.wordpress.com

Sally Cat’s PDA Page

*Please note the Amazon books are affiliate links. This means I get a small referral fee on purchases. It does not cost any extra to the buyer. Thank you for supporting me in this way.

The Great Daffodil Appeal – Marie Curie 

It’s that time of year when people all over the country are getting involved in The Great Daffodil Appeal for Marie Curie. Marie Curie is a wonderful charity that supports people with terminal illness, and their families. The funds raised from the appeal help to pay for nurses to provide care to families during this most difficult time.

The Great Daffodil Appeal, Marie Curie, fundraising, charity

If you want to take part but haven’t already registered, it’s not too late! Here are some of my favourite fundraising ideas to get you started. And if these don’t inspire you, make up your own instead!

Get creative:

  • Make and sell handmade cards, crochet daffodils or origami daffodils.
  • Hold a creative workshop and charge an entry fee to raise money.

Get baking:

  • Make some delicious cakes to sell.
  • Have a bake-off challenge.

Find some yummy celebrity recipes here.

Get active:

  • Hold a charity sports match.
  • Have a sports day (charge for people part in the races).
  • Do a sponsored run or swim.
  • Set yourself a walking, cycling, running or swimming goal to achieve by x date.


The Great Daffodil Appeal, Marie Curie, fundraising, charity

Find out more information and sign up for fundraising here: 

The Great Daffodil Appeal Fundraising Page.

The Great Daffodil Appeal, Marie Curie, fundraising, charity